A meeting conceived in collaboration with AriSLA – Fondazione Italiana Ricerca Sclerosi Laterale Amiotrofica and AISLA – Associazione Italiana Sclerosi Laterale Amiotrofica.
“Beyond the Disease: The Beauty of Research and Care” is an event that fosters discussion and in-depth analysis of the importance of scientific research and innovation in the treatment of ALS and other rare diseases. Through dialogue among experts, researchers, and representatives of those affected by ALS, the event will examine the concept of care from a wide-ranging perspective that encompasses medical advancements, rights, and quality of life.
This open dialogue aims to explore how science and the care network can transform the experience of the disease into a journey of inclusion and dignity, restoring the true meaning of a cure.
PROGRAM
2:45 – 4:00 PM / 3:30 – 4:45 PM
Guided tours of the exhibition ‘Preserving the Brain: A Call to Action’ led by experts and introduced by AISLA
5 – 7 PM
Round table at Cinema Godard “Beyond the Disease: The Beauty of Research and Care”
Moderators: Elisa Longo and Tiziana Zaffino, journalist and press officer AISLA and AriSLA
The Value of the Support Network
Fulvia Massimelli, AISLA National President
The Role of Research
Anna Ambrosini, Scientific Manager AriSLA
Research is Life: Turning Knowledge into Care
Nilo Riva, Neurologist and Researcher at the Fondazione IRCCS Istituto Neurologico Carlo Besta in Milan
Caring for the Future: Perspectives and Challenges in ALS Treatment
Federica Cerri, Neurologist, ALS area referent at the NeMO Clinical Centre in Milan and member of the AISLA medical-scientific commission
From Knowledge to Vision: the dialogue between science and art in the Care
Carlo Mango, Research Department Director, Fondazione Cariplo
The sense of Research and The New Paradigm of Care
Alberto Fontana, NeMO Clinical Centres and Ambrogino d’Oro
Q&A with the public.